FXS: What To Do When A Loved One Has It?

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FXS:  What To Do When A Loved One Has It?

No, it’s not some new tech gadget.

It’s not even a title of one of those sci-fi thrillers.

Just because it sounds like any of them, it can be either of them. Quite far off, actually!

What is FXS?

FXS stands for Fragile X Syndrome.

Yes, it’s not some gadget, neither is it a sci-fi thriller. It’s a disorder. And it’s affecting many of our brothers and sisters.

The National Fragile X Foundation defines Fragile X syndrome (FXS) as a genetic condition that causes intellectual disability, behavioral and learning challenges and various physical characteristics.

Both males and females are susceptible to the condition but males are more frequently affected than females, and more severely. The foundation further states that life expectancy is not affected in people with FXS because there are usually no life-threatening health concerns associated with the condition.

How Do We Know One Has FXS?

Intellectual disabilities constitute the first and foremost indicators to know that a person has Fragile X Syndrome. Such deficiencies can range from moderate learning disabilities to more severe intellectual disabilities. Again, these are more pronounced among males than among females.

Behaviorally, we can also determine that an individual has the disorder. If one has any of the characteristics listed below, it may mean he/she has FXS:

  • Attention Deficit Disorder or ADD
  • Attention Deficit Hyperactivity Disoder, better recognized as ADHD
  • Autism and autistic behaviours
  • Social anxiety
  • Hand-biting and/or flapping
  • Poor eye contact
  • Sensory disorders
  • Increased risk for aggression.

Physical traits may include:

  • Large ears
  • Long face
  • Soft skin
  • Large testicles (called “macroorchidism”) in post-pubertal males.

Connective tissue problems may include:

  • Ear infections
  • Flat feet
  • High arched palate
  • Double-jointed fingers
  • Hyper-flexible joints.

“They are also very social and friendly, have excellent imitation skills, have a strong visual memory/long term memory, like to help others, are nice, thoughtful people and have a wonderful sense of humor,” the foundation also notes.

Treatment For People With FXS

According to the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), there is no single treatment for Fragile X syndrome, but there are treatments that help minimize the symptoms of the condition.

“Individuals with Fragile X who receive appropriate education, therapy services, and medications have the best chance of using all of their individual capabilities and skills. Even those with an intellectual or developmental disability can learn to master many self-help skills,” NICHD adds.

Bright Horizon Homes Is Where People With FXS Should Be

Speaking of appropriate education, therapy services and medications, our company, Bright Horizon Homes, the compassionate developmental disability care services in Kanabec Dr. Wasilla Alaska, fits the bill to a tee. 

Here’s why:

Bright Horizon Homes was founded in 2010 by Michael D. Sanders Sr. Michael earned his bachelor’s degree from California State University, Stanislaus in Psychology and went on to earn his MBA in Public Administration from Columbia Southern University. Michael brings both leadership and compassion for helping people in programs such as autism care and cerebral palsy treatment.

With him at the kind-hearted developmental disability care services in Kanabec Dr. Wasilla Alaska is Debra B. Sanders. Debra is a retired Special Education teacher with more than twenty years of experience. She earned her bachelor’s degree from California State University, Stanislaus in Liberal Studies and went on to earn her Special Education, MA from Chapman University.

Debra is determined to provide extraordinary developmental disability care service to individuals in our local communities. She brings both experience and compassion for helping people at the benevolent developmental disability care services in Kanabec Dr. Wasilla Alaska.

When it comes to qualifications, competence, experience and heart, no other combo could beat the Michael-and-Debra tandem in leading Bright Horizon Homes towards fulfilling our mission.

Residents of Wasilla and nearby areas, visit us at 1453 Kanabec Dr., Wasilla, Alaska 99654. If not, give us a ring at 907-357-2233, or send us your message via fax at 877-236-7707 or through email at brighthorizonhomes@gmail.com. Please follow us on Facebook, Twitter, Pinterest and Instagram.

We would like to know your thoughts on FXS. Please leave your comments on the space below.

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